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FS#42 - Confirmation of ethical consent

Attached to Project: LOVD
Opened by Raymond Dalgleish (rwmd) - Thursday, 11 June 2009, 17:38 GMT+2
Task Type Feature Request
Category Backend / Core → Variant submission
Status Unconfirmed
Assigned To No-one
Operating System All
Severity Medium
Priority Normal
Reported Version 2.0-18
Due in Version Undecided
Due Date Undecided
Percent Complete 0%
Votes 0
Private No

Details

When unpublished data are submitted directly to my databases I have to make the assumption that the submitter has obtained informed consent from the patient or the patient\'s guardians to do so. It would be desirable that there be a check box on the submission form, for remote submissions, to confirm that ethical consent had indeed been obtained. Failure to check the box would block the submission.
This task depends upon

Comment by Ivo F.A.C. Fokkema (ifokkema) - Thursday, 30 July 2009, 16:45 GMT+2
We believe it would be more efficient to include such a checkbox, possibly together with more "guidelines", on the submitter registration form. Do you agree?
Comment by Raymond Dalgleish (rwmd) - Friday, 31 July 2009, 09:37 GMT+2
No I disagree. It's a simple reminder EACH TIME that ethical issues need to be taken into account. Another reason is that submitter accounts might be shared within an organisation so that there is just a single point of contact back to the submitters. In such a scenario, not all of the actual submitters will have necessarily acknowledged the need for an ethical approach.

I still think that there should be a checkbox on the submitter form with a link to the guidelines.

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